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24 February 2014
The best update News in 6 years.. The preliminary scan result today was fantastic. Doctor said at the meeting a visual inspection showed that even more shrinkage . So much so that some tumors have shrunk so much that they are no longer visable. When the radiologist finishes his analysis we will know more detail. Thats in 2 weeks time. Update 13 Jan 15
Our last scan results from 4th jan have shown even more shrinkage. We are at well over 60% in total now. Keep it up mavis. |
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Update20 October 2014
At the recent mesothelioma conference I was talking to Prof. Fennel. He said its really good news for Mavis isnt it. I said yes ,to be the first person in the UK to have major shrinkage in all tumors using imunotheraphy is amazing. He replied IN the World. I said No in the UK . He once more said No, In the world. So many people are waiting the results of this trial.A second scan result after that report showed even more shrinkage. We are about to have another scan on 30 of this month and if we get more shrinkage we will be well under 50% reduction..Watch this space.
At the recent mesothelioma conference I was talking to Prof. Fennel. He said its really good news for Mavis isnt it. I said yes ,to be the first person in the UK to have major shrinkage in all tumors using imunotheraphy is amazing. He replied IN the World. I said No in the UK . He once more said No, In the world. So many people are waiting the results of this trial.A second scan result after that report showed even more shrinkage. We are about to have another scan on 30 of this month and if we get more shrinkage we will be well under 50% reduction..Watch this space.
Update: 2 July 2014
We have had our 2nd session of the wonder drug now. It seems to be tolerable. Little side effects apart from flu like symptoms and tiredness. WE get a scan next month to check on how its working.
We have had our 2nd session of the wonder drug now. It seems to be tolerable. Little side effects apart from flu like symptoms and tiredness. WE get a scan next month to check on how its working.
4th June 2014.
Another trip to Royal Marsden. Mavis signed loads of consent forms in preperation for her new trial.They had sent samples of her Bi Op to America to check for PDL-1. It proved Positive so making her elligable. The next step is a return on 12th June for Initial tests. Which if OK she will commence the trial on 16 th June. She has committed to a grueling regime consisting of a visit to hospital EVERY WEEK for up to 2 years. Thats every 2nd Monday for the drug and every other monday for test and check ups.
Another trip to Royal Marsden. Mavis signed loads of consent forms in preperation for her new trial.They had sent samples of her Bi Op to America to check for PDL-1. It proved Positive so making her elligable. The next step is a return on 12th June for Initial tests. Which if OK she will commence the trial on 16 th June. She has committed to a grueling regime consisting of a visit to hospital EVERY WEEK for up to 2 years. Thats every 2nd Monday for the drug and every other monday for test and check ups.
5th May 2014
Mavis has been to the Royal Marsden and after initial interview they have offered her a place on a Phase 1 Drug Trial. We have to wait untill 21st May for confirmation. They have first to check her biopsy to ensure it has the things in it . Should the biop not have it present ,then a different trial may be offered. It was emphasised that it is not a cure. But any delay or a stay of excecution is welcome.
Mavis has been to the Royal Marsden and after initial interview they have offered her a place on a Phase 1 Drug Trial. We have to wait untill 21st May for confirmation. They have first to check her biopsy to ensure it has the things in it . Should the biop not have it present ,then a different trial may be offered. It was emphasised that it is not a cure. But any delay or a stay of excecution is welcome.
Friday 13th December 2013.
Its Scan results day. appointment 10-30. We arrive early , but as usual They are running late. We finally get to see Oncologist at around 11.00 The News is about what we expected. It has grown a bit more since the scan 2 months ago. But its not spread to other areas. And the increase although bad news is not devistating . Mavis has decided not to opt for more Chemo at this point. Another scan is programmed for march 2014. If no trials present themselves she may concidder returning to some form of chemo. But we are in the realms of quality of Life against quantity. Hopefully the speed of the growth will mean that we do not need to rush into any decisions yet. She is remarkably in good spirits.
Its Scan results day. appointment 10-30. We arrive early , but as usual They are running late. We finally get to see Oncologist at around 11.00 The News is about what we expected. It has grown a bit more since the scan 2 months ago. But its not spread to other areas. And the increase although bad news is not devistating . Mavis has decided not to opt for more Chemo at this point. Another scan is programmed for march 2014. If no trials present themselves she may concidder returning to some form of chemo. But we are in the realms of quality of Life against quantity. Hopefully the speed of the growth will mean that we do not need to rush into any decisions yet. She is remarkably in good spirits.
27 November 2013.
2 days to go and we get a scan. This one is very important.
2 days to go and we get a scan. This one is very important.
29th Sept 13. chemo all done now. We get a break until the next time. That will be 5th Line. very scary.
11th September 13: The Blood count ok so its on for chemo Friday
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10th September 13: Back on the Chemo rounds tomorrow , its blood check day but after non stop chemo regime since March this year we are almost at the end.. The twice weekly and sometimes 3 visits weekly are beginning to tell on us. We are looking forward to a few months break.
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